Yesterday was Fibromyalgia Awareness Day, and I missed it.
While I’m not an outspoken advocate for fibromyalgia and chronic pain, I do take opportunities to educate when the opportunity arises. I am also very lucky with my fibromyalgia – I am able to hold down a job, and have a fairly active life which is often something that chronic pain sufferers don’t get to have.
I was diagnosed in the early to mid 90’s when it was just becoming a “thing”. No one really knew what it was then, and I spent a lot of time doctor hopping until I ended up with the doctor who wrote the first book on fibromyalgia. I was very sick and ended up going on disability, and was mostly bedridden for about 6 months. A big day for me was moving from the bed to the couch, and possibly even a shower.
Over the years, I have found what works for me and what my limits are. I do best with moderate, low impact exercises like walking, and my diet is paleo for the most part. No sugar, no grains, no artificial anything. Gluten free. If I cheat, I know I will pay for it. Sometimes it’s worth it but most of the time it’s not. This is only what has worked for me. So many people who I know who have chronic pain conditions don’t ever find anything that gives them any sort of break, or anything that will let them lead a somewhat normal life. I still hurt, every minute of every day. My neck and shoulders hurt so that I can’t have anyone touch them.
It’s hard to hear things like, “But you don’t look sick”, or, “Take an aspirin and you will be fine” from well-meaning people. If it were that simple, I would have done it a long time ago. Invisible illnesses are real, not imagined. They are just as real as a visible illness and should be treated with the appropriate amount of care given to any illness or dis-ease.
Stepping off of my soapbox now!
We will be heading north to house hunt this weekend, planning for our move this summer! When we moved here, we had 8 hours to find a place to live. It was so rushed and we didn’t even know if the place had doors or windows, we just signed the lease!
Now we have appointments at 7 places which is exciting for me. I have had a couple of deal-breakers which have already gotten broken as we have been looking at the area. K has been so generous in the past when we have moved, and I’ve gotten what I wanted in a home (washer/dryer, close to work, garage) It’s high time that she gets what she wants. She wants something in a more urban setting where we can walk to restaurants, shopping, and night life.
I have lots of reviews waiting to post when we get back.
Happy wife, happy life. Wish us luck!